Free Online Prostate Cancer Support Groups

Hello, Prostate Cancer Awareness Month!

Twitter is buzzing with resources for Prostate Cancer all September, join in by scrolling #prostatecancerawarenessmonth

One nugget I’ve found is in the form of a fellow PhD researcher, Denise Pyle. She is conducting a research project on Prostate Cancer Online Communities through the University of Southern Queensland (scroll down to take part in her research).

I created A Touchy Subject for the similar reasons Denise is doing her research. The online world opens up the possibility of sharing the latest helpful resources and connecting people to share their experiences, no matter where they are in the world and without having to deal with the headaches of yet another car parking expedition.

Here are Five online support groups Denise and I compiled for Prostate Cancer Awareness Month.

Online Prostate Cancer Support Groups

JimJimJimJim : Australian advanced prostate cancer support group.

YANA (You are not alone now) : Prostate cancer support site

FrankTalk : Erectile Dysfunction support site (not prostate cancer specific but highly recommended by men who have had prostate cancer):

PCFA Australia : Online forum, and also offline/in person support groups.

Us Too : International support group online called ‘Inspire’

Share your online support group experience - or why you don’t use online groups!

Denise is recruiting men who have been diagnosed with prostate cancer (time since diagnosis, stage of disease, treatment type etc. does not matter) to participate in her study. She needs as many men who do not use online prostate cancer communities as men who do.

Participation involves:

 Stage 1 - 45 to 60-minute baseline survey (completed in hardcopy or online)

 Stage 2 – 5-minute six-month follow-up survey (completed by phone or online)

After completing the baseline survey participants will be given an opportunity to enter a Random Prize Draw to win one of three prepaid VISA gifts cards to the value of $200, $100, or $50 (AUD).

Winners will be drawn on 21 October 2019 at the conclusion of the baseline data gathering stage.

Complete Denise’s survey online here

Alternatively you can request a hard copy of the survey be posted to you by contacting Denise by email: denise.pyle@usq.edu.au.

This study has been approved by the University of Southern Queensland Human Research Ethics Committee: H19REA055

Victoria Cullen